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  1. 'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1

    'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1 Journal of paediatrics and child health Higgs, E. J. McClaren, B. J. Sahhar, M. A. Ryan, M. M. Forbes, R. 52 ...

  2. 'Congenital peripheral neuropathy presenting as apnoea and respiratory insufficiency: spinal muscular atrophy with respiratory distress type 1 (SMARD1)'

    'Congenital peripheral neuropathy presenting as apnoea and respiratory insufficiency: spinal muscular atrophy with respiratory distress type 1 (SMARD1)' Appleton, R. E. Hubner, C. Grohmann, K. Varon, R. 46 8 576 2004 4696 ...

  3. 'Effectiveness of sedation using nitrous oxide compared with enteral midazolam for botulinum toxin A injections in children'

    'Effectiveness of sedation using nitrous oxide compared with enteral midazolam for botulinum toxin A injections in children' Gubbay, A. Langdon, K. 51 6 491-2; author reply 492 2009 2653 ...

  4. 'Fighting for care': parents' perspectives of children's palliative care in South Tyrol, Italy

    'Fighting for care': parents' perspectives of children's palliative care in South Tyrol, Italy International journal of palliative nursing Darbyshire, P. Mischo-Kelling, M. Lochner, L. Messerschmidt-Grandi, C. 21 11 542-7 2015 BACKGROU ...

  5. 'I don't know how we coped before': a study of respite care for children in the home and hospice

    'I don't know how we coped before': a study of respite care for children in the home and hospice Eaton, N. 17 23 3196-204 2008 Aim and objective. To describe the experiences of families, whose children have life-limiting and life-threatenin ...

  6. 'I had this horrible pain': the sources and causes of pain experiences in 4- to 11-year-old hospitalized children

    'I had this horrible pain': the sources and causes of pain experiences in 4- to 11-year-old hospitalized children Kortesluoma, R. L. Nikkonen, M. 8 3 210-31 2004 Researchers have relied, almost without exception, on adults for qualitative inform ...

  7. 'It is life threatening but I don't mind'. A qualitative study using photo elicitation interviews to explore adolescents' experiences of renal replacement therapies

    'It is life threatening but I don't mind'. A qualitative study using photo elicitation interviews to explore adolescents' experiences of renal replacement therapies Child: care, health and development Wells, F. Ritchie, D. McPherson, A ...

  8. 'It takes three to tango': a framework for understanding patient partnership in paediatric clinics

    'It takes three to tango': a framework for understanding patient partnership in paediatric clinics Gabe, J. Olumide, G. Bury, M. 59 5 1071-9 2004 Since the late 1990s, the term 'partnership' has increasingly been inserted into the lite ...

  9. 'Jumping through hoops': parents' experiences with seeking respite care for children with special needs

    'Jumping through hoops': parents' experiences with seeking respite care for children with special needs Doig, J. L. McLennan, J. D. Urichuk, L. 35 2 234-42 2009 BACKGROUND: Respite care may act as a means to reduce stress and fatigue in peo ...

  10. 'Medicines for Children'

    'Medicines for Children' RCPCH, NPPG 2003 5464 ...

  11. 'One wants to know what a chromosome is': the internet as a coping resource when adjusting to life parenting a child with a rare genetic disorder

    'One wants to know what a chromosome is': the internet as a coping resource when adjusting to life parenting a child with a rare genetic disorder Sociology of health & illness Gundersen, T. 33 1 81-95 2011 The internet has democratised acces ...

  12. 'Something normal in a very, very abnormal environment'- Nursing work to honour the life of dying infants and children in neonatal and paediatric intensive care in Australia

    'Something normal in a very, very abnormal environment'- Nursing work to honour the life of dying infants and children in neonatal and paediatric intensive care in Australia Intensive & critical care nursing: the official journal of the Brit ...

  13. 'Something normal in a very, very abnormal environment'--Nursing work to honour the life of dying infants and children in neonatal and paediatric intensive care in Australia

    'Something normal in a very, very abnormal environment'--Nursing work to honour the life of dying infants and children in neonatal and paediatric intensive care in Australia Intensive & critical care nursing Bloomer, M. J. Endacott, R. Copne ...

  14. 'The end of treatment is not the end': parents' experiences of their child's transition from treatment for childhood cancer

    'The end of treatment is not the end': parents' experiences of their child's transition from treatment for childhood cancer Psycho-oncology McKenzie, S. E. Curle, C. 21 6 647-54 2012 OBJECTIVE: This study explores parents' experie ...

  15. 'The most disgusting ever': children's pain descriptions and views of the purpose of pain

    'The most disgusting ever': children's pain descriptions and views of the purpose of pain Kortesluoma, R. L. Nikkonen, M. 10 3 213-27 2006 This article examines an area of a larger research project, aimed at investigating hospitalized child ...

  16. 'Thinking outside the box': complementary and alternative therapies use in paediatric oncology patients

    'Thinking outside the box': complementary and alternative therapies use in paediatric oncology patients Molassiotis, A. Cubbin, D. 8 1 50-60 2004 The aim of this study was to determine the prevalence of complementary and alternative medicine (CA ...

  17. 'Unbearable suffering': a qualitative study on the perspectives of patients who request assistance in dying

    'Unbearable suffering': a qualitative study on the perspectives of patients who request assistance in dying Journal of medical ethics Dees, M. K. Vernooij-Dassen, M. J. Dekkers, W. J. Vissers, K. C. van Weel, C. 37 12 727-34 2011 BACKGROUND: One ...

  18. "AIDS is rape!" gender and sexuality in children's responses to HIV and AIDS

    "AIDS is rape!" gender and sexuality in children's responses to HIV and AIDS Bhana, D. 69 4 596-603 2009 This paper examines young African school children's understanding of HIV and AIDS. Based on focus group interviews with children a ...

  19. "Am I going to die, aunt Deborah?"

    "Am I going to die, aunt Deborah?" Journal of Christian nursing: a quarterly publication of Nurses Christian Fellowship Rushing, D. S. 29 2 113-5 2012 A nurse relays her experience with the death of her 10-year-old nephew, and offers resources f ...

  20. "Being a good patient" during times of illness as defined by adolescent patients with cancer

    "Being a good patient" during times of illness as defined by adolescent patients with cancer Cancer Weaver, M. S. Baker, J. N. Gattuso, J. S. Gibson, D. V. Hinds, P. S. 122 14 2224-33 2016 BACKGROUND: Adolescents with cancer cite the opinions of ...

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